Expanded beyond ALA to include international collaborators. Ran a meeting at ASH to present project concept, well received and protocol/data collection tool to be completed by end Jan 2023 for circulation and feedback. Expect not all sites will have eligible patients, expected 1-2 per site for these who do as rare clinical scenario. Hoping to have sufficient US inclusion to look at outcomes with CAR-T vs other treatments. Will circulate protocol within ALA for those interested to contact Kat  directly.

Update 24 November 2023 – close to having new umbrella protocol approved soon

Update 1 May 2025 – hoping to have collected data for the study by mid May, but sadly we have had to change this to be an international study without involvement by other Australian sites due to ethics/governance issues.All involved sites have been updated individually previously.